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9780597833724

Official Patient's Sourcebook on Epidermolysis Bullosa A Revised and Updated Directory for the Internet Age

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  • ISBN-13: 9780597833724
  • ISBN: 0597833729
  • Publisher: Icon Group International, Incorporated

AUTHOR

Icon Group International, Inc. Staff

SUMMARY

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to epidermolysis bullosa, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on epidermolysis bullosa. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Epidermolysis Bullosa: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Epidermolysis Bullosa; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Epidermolysis Bullosa; Chapter 5. Books on Epidermolysis Bullosa; Chapter 6. PerioIcon Group International, Inc. Staff is the author of 'Official Patient's Sourcebook on Epidermolysis Bullosa A Revised and Updated Directory for the Internet Age' with ISBN 9780597833724 and ISBN 0597833729.

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