6981425
9780976448907
In All About Me! the author offers encouragement and hope to parents with a child diagnosed with Smith-Magenis Syndrome (SMS), a rare and complex genetic disorder. The author humorously shares many family experiences occurring during the 36 years since her son, Paul's, birth.Medical, educational, and social professionals will also find expert guidance in managing this rare genetic condition from the two geneticists who first described it in the early 1980's. They have added valuable technical insight into SMS.For the reader who simply wants to understand, this book will give an inside look at a special needs family and what they deal with.Shirley Dechaine is the author of 'All About Me! One Family's Experience with Smith-Magenis Syndrome' with ISBN 9780976448907 and ISBN 0976448904.
[read more]